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Author: addisjourney

Addi was diagnosed with Stage 4 High Risk Neuroblastoma Cancer on August 18, 2019 at the age of two. She has endured many rounds of chemo, immunotherapy, tumor resection surgery where she also lost her kidney and adrenal gland, radiation and a clinical trial treatment at MSK in New York ( for 1-1/2 years) when her family was told there were no more options for treatment after she went into liver failure and almost died. Addi now has NO evidence of disease and completed 890 days of treatment on January 26, 2021. She will continue her journey as she has a high rate of relapse with scans every 3 months in Atlanta and at MSK in New York City for the next two years. During this time Leanne (LaLa), Addi's mother, has written two books. One book is the story of Addi's journey with many highs and many lows but all done in faith that she would be healed. The other book is a 30 day devotional book of the devotions that LaLa wrote and published on her blog each week during this journey. Leanne is working on her 3rd book and will have it published by the end of 2021. As an author, blogger and advocate, LaLa wishes to bring hope, awareness and be a resource for others that may be going through the same journey with their child as she has traveled with Addi for over 2-1/2 years. Addi has lived with LaLa and WaWa since she was 15 months old and is biologically Leanne's niece. Leanne and Warren adopted Addi August 1, 2019 and officially made her their daughter along with their other adult children.....Amy, Emily, Austin married to Marlee, Alexis and Seth. She is the aunt to the newest member of the family....Baby Bentlee! Addi is followed by people all over the world as she has overcome many obstacles in her short life. Her story is one filled with lots of love, faith and hope! We continue to blog about her story to bring awareness to childhood cancer, to bring hope to others who are going through this unthinkable journey, to be a resource and to share the faith that we have in God as he healed Addi in a miraculous way! Addi and LaLa have made it their mission to advocate for Childhood Cancer and to help other organizations in their efforts to help the cancer community. Addi has been featured with the Atlanta Ronald McDonald House campaign, The Rally Foundation for Childhood Cancer, CURE Childhood Cancer, Aflac Cancer and Blood Disorders Center, Children's Healthcare of Atlanta, Beads of Courage, Make a Wish Georgia, Little Miss of America, Love Beats Cancer, along with others.
Addi’s Brave Gown Birthday Wish

Addi’s Brave Gown Birthday Wish

As you all know we lost my beloved brother and then my amazing dad Addi’s birthday week. Addi had put so much effort in her 7th Birthday Brave Gown’s mission and we never got to do a final call before her birthday because the day after her birthday Greg passed away. Since we didn’t get to finish her birthday mission campaign, we are doing that now. We’d love for it to be as big as possible!  Addi wanted this final…

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Addi’s Christmas Mission

Addi’s Christmas Mission

ADDI’S CHRISTMAS MISSION Are you wanting to help a child this Christmas that is in need? If so, Addi and I would love for you to join us for Addi’s Christmas Mission this year. We will be distributing toys, jackets, hats and gloves to children in need this Christmas and we need your help! I have created an Amazon wish list that you can purchase items from for all ages. These items will be delivered to us and we will…

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DEVOTIONAL: Let the words of my mouth

DEVOTIONAL: Let the words of my mouth

DEVOTIONAL:  Let the words of my mouth What is coming out of your mouth?  Is it love, is it life, is it compassion and positivity or are you the person that feels it is your place to let everyone know how wrong they are and condemning them because they don’t agree with your way of thinking or doing things?  The Bible says it clearly in Psalms 19:14 “Let the words of my mouth, and the meditation of my heart, be acceptable in thy…

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DEVOTIONAL:  His stripes have made us whole!  

DEVOTIONAL:  His stripes have made us whole!  

DEVOTIONAL:  His stripes have made us whole!   God is our healer!  He is a healer of our broken bodies, our broken hearts, our broken relationships, and our broken minds.  There are so many who are dealing with brokenness in one of these forms and I believe God wants us to seek Him more than ever to heal us, to heal others, and to heal our land.  Finding the healing and comfort in God begins with a deeper walk with Him.  When we dwell in His…

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DEVOTIONAL: From the valley to the mountain top

DEVOTIONAL: From the valley to the mountain top

DEVOTIONAL:  From the Valley to the Mountain Top Life is fairly easy when we are standing on the mountain, and we have peace of mind, but things can change when we find ourselves in the valley and life’s problems begin to overwhelm us.  Do you feel like you are constantly trying to climb out of the valley to get to the top of the mountain?  Do you feel like you are going to be in the valley forever and will never see victory?  So…

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WEDNESDAY WARRIOR – KADI

WEDNESDAY WARRIOR – KADI

This is Kadi….. She is 12 years old…. My amazing and brave little warrior was diagnosed on April 4, 2019 with high grade Osteoblastic osteosarcoma of the left fibula. The cancer was localized meaning it hadn’t spread and her prognosis was good! She completed 28 total weeks of chemotherapy and had a surgery to remove 2/3 of her fibula bone. Unfortunately, her perennial nerve was wrapped around the tumor and had to be cut leaving her with permanent drop foot….

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WEDNESDAY WARRIOR – ALEX

WEDNESDAY WARRIOR – ALEX

This is Alex….. He is 3 years old….. On Mother’s Day of 2020 we got the heartbreaking diagnosis of High Risk Stage 3 Neuroblastoma for our 3 year old baby boy named Alex. “Your child has cancer.” Those four little words are the most devastating words a parent can hear. Everything in our world came crashing down… The Tumor was 17cmx13cm and was wrapped around major attires. We thought fighting cancer was going to be the hardest but what we were…

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WEDESDAY WARRIOR – GAGE

WEDESDAY WARRIOR – GAGE

This is Gage….. He is 4 years old…. At just 26 months old our sweet little boy was diagnosed with a very aggressive brain tumor called Atypical Teratoid Rhabdoid Tumor (AT/RT). He had an 8-hour surgery to remove a tennis ball size tumor from the deepest part of the brain.  He endured 5 months of chemotherapy with stem cell transplant. Gage was clear of cancer for a year. Unfortunately, he relapsed in November 2019. He then started 6 weeks of…

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DEVOTIONAL – Sometimes Miracles come in Unanswered Prayers

DEVOTIONAL – Sometimes Miracles come in Unanswered Prayers

DEVOTIONAL: Miracles are Sometimes Unanswered Prayers I have been thinking a lot about miracles lately.  I guess because I have witnessed a true miracle in my precious girls’ life.  Only a miracle working God could have brought forth the miracle we witnessed in her life.  It was not all at once, but God answered through prayer, the knowledge of doctors, and through faith.  I have also thought about the miracles I have prayed for that did not come to fruition as I wanted.  Take my…

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WEDNESDAY WARRIOR – MIGUEL

WEDNESDAY WARRIOR – MIGUEL

This is Miguel… He is 5 years old… He was diagnosed with Acute Myeloid Leukemia (AML) on 12/18/20 Miguel or “Migo” as some call him, was diagnosed with AML 12/18/2020 but we were told 12/17/2020 “I believe your son has leukemia, and you need to get the girls bags packed and head to Cook Children’s ASAP, the call has been made and they’re waiting for you guys to come through the ER to be admitted.”  Longest drive we have ever made…

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WEDNESDAY WARRIOR – JULIANA

WEDNESDAY WARRIOR – JULIANA

This is Juliana (Ana’s Army) She is 2 years old She was diagnosed with Stage 4 High Risk Neuroblastoma Cancer on July 11, 2020 Juliana is a sweet and cuddly 2-year-old. She loves animals, music, and books. She loves her two sisters and her mommy, but her biggest love is probably her daddy. Juliana came into this world at 30 weeks along with her identical twin sister. At 11 days old, she developed necrotizing enterocolitis. She went into emergency surgery…

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WEDNESDAY WARRIOR – Haysley

WEDNESDAY WARRIOR – Haysley

This is Haysley….. She is 15 months old…… She was diagnosed with Grade III Ependymoma on 11/7/2020 Haysley is the 15-month-old daughter of Sloan and Taylor Baham and the twin sister to Kaizlynn. She underwent brain surgery on November 7th, 2020 to have a tumor removed and later that month diagnosed with an aggressive type of brain cancer.  She has undergone two rounds of chemo so far and will have to do radiation and four more rounds of chemo. In…

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WEDNESDAY WARRIOR – Pryce

WEDNESDAY WARRIOR – Pryce

This is Pryce….. He is 5 years old…. Pryce was first diagnosed August 2018 with Stage IV Neuroblastoma Cancer. He went through months of chemo, 2 stem cell transplants, 12 rounds of radiation, 8 rounds of immunotherapy, and multiple surgeries. He had his first clear scans August 2019.  The celebration didn’t last long. His scans three months later showed new spots. In January 2020, Pryce couldn’t keep anything down and was very hard to wake up. We took him to…

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WEDNESDAY WARRIOR – Azalea

WEDNESDAY WARRIOR – Azalea

This is Azalea She is 6 years old Azalea Coolidge’s battle against Stage 4 High Risk MYCN Amplified Neuroblastoma. (Neuroblastoma develops when normal fetal neuroblasts do not become mature nerve cells, instead they continue to grow and divide.) Azalea was diagnosed with Neuroblastoma childhood cancer at Albany Medical Center in upstate NY March 7, 2017 at the age of two when a 6-inch tumor was detected in her abdomen. It was crushing/encasing her vital organs, arteries, collapsing her lungs and…

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WEDNESDAY WARRIOR – Hannah Grace

WEDNESDAY WARRIOR – Hannah Grace

This is Hannah Grace She is 5 years old…. Hannah was diagnosed with embryonic rhabdomyosarcoma on Feb 15, 2017. She was 19 months old. She was given a good prognosis and endured 42 weeks of chemotherapy and a week of targeted radiation. She was in remission for almost a year.  In October 2018, routine scans showed a large mass in Hannah’s uterus. She started a new chemotherapy protocol and in January of 2019, had a total hysterectomy, partial vaginectomy (at…

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WEDNESDAY WARRIOR – Weston

WEDNESDAY WARRIOR – Weston

This is Weston He is 13 months old On July 18th, 2020 it seemed to be a normal day…..well that normal day turned into a nightmare. Out of nowhere, 6-month-old Weston started urinating blood, we rushed him straight to our local hospital where they ran every test they could. Turned out that Weston had a grapefruit size mass on his left kidney— thought to be Wilms. Our local hospital then sent us to the nearest children’s hospital which happens to…

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DEVOTIONAL: ROUND HOLE, SQUARE PEG

DEVOTIONAL: ROUND HOLE, SQUARE PEG

Have you been praying for God to change a situation you are in?  Well, let me ask you one simple question…Are you doing the same things yet wanting a different result?  I remember when my kids were little, they had this toy that consisted of different shapes.  They had to find the shape on the box and put that same shaped block in the box.  One day my son kept trying to put a round circle in a square hole….over and over he kept…

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WEDNESDAY WARRIOR – Millie

WEDNESDAY WARRIOR – Millie

  WEDNESDAY WARRIOR – MILLIE This is Millie.   Millie, the baby of 9 children.   Millie, an aunt to 6 nieces and nephews.   Millie, our beautiful blond curly headed girl.  Millie, a precious 3-year-old who never saw her 4th birthday.  Millie was a true warrior.  At the age of 2.5 she was diagnosed with Stage 4, Neuroblastoma.  Millie battled this horrific cancer for 1 year and 18 long days.  She was BRAVE and COURAGEOUS in the face of many painful and…

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DEVOTIONAL: ENDURE TO THE END

DEVOTIONAL: ENDURE TO THE END

  DEVOTIONAL:  ENDURE TO THE END   In the world we are living in, it is probably safe to say there are days you feel like you can’t take one step in front of the other because the trials of life are weighing you down. Some days your endurance to make it through the day much less a difficulty you may be facing, seems nearly impossible.  So many times, I have had to remind myself to face my same difficulties as if…

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WEDNESDAY WARRIOR

WEDNESDAY WARRIOR

  I’ve been trying to decide how I could help other childhood cancer children/families and bring more awareness to childhood cancer. There are many things going through this mind of mine but for now, I have decided on WEDNESDAY WARRIOR! What I want to do is share with you each Wednesday a little warrior who is either fighting now so that we can pray and support that child and family; a warrior who is in remission so we can be…

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