Prayers for a quiet weekend…….

Ok….so today….what can I say…..It has been a day!!!  A lot of meetings with doctors today! First and foremost Addi seems better today and a little more awake.  She has slept most of the day but was aroused enough to do a little OT up in her chair and has watched her iPad for a few minutes today!  Praise the LORD!  Last night we couldn’t get her aroused at all and was afraid she was headed back to ICU so we are thanking God for every little improvement!!!  There is just so much to her care and as the doctor stated today…”she is a very complicated case.”

Her night was rough with low oxygen levels, high respirations and almost going back on oxygen but after my plea with God at 3am, her oxygen level shot back up around 90ish and stayed there.  I mean she had the nasal cannula in her hand ready to put on her nose when all of a sudden she went from an O2 of 87 to 92…..God heard my plea I am sure of it and was showing me that He is still here and is hearing the prayers being said for Addi.  I did not sleep much because I watched her so closely and just scared to not be near her in case something happened.  Today she has thrown up all of her feeds that are given to her through the NG tube but docs said her gut is just not working yet and just needs some time to heal but needs the feeds to stimulate it.

So let me get to some good news because God knows we needed it after the past couple of days.  First of all her liver numbers are looking SO GOOD that the Hepatology team of doctors have dismissed her from their care.  Just so everyone knows that has commented and sent messages….her ammonia levels have been checked daily.  She gets a full liver work up daily to see where her numbers are being that she was in liver failure.  Her ammonia level and bilirubin numbers are now to a NORMAL level!  Another shout of PRAISE!  The doctors are saying that although liver numbers are better the CT shows the bigger picture in that her organs (liver, intestine, bowel, stomach and lungs) are still very sick and took a huge hit as they began to shutdown…they are inflamed, enlarged, obstructed and just not working like they are supposed to.  It is going to take time….a lot of time but God is healing her day by day.  There will be set backs but I am just believing that soon….very soon she will be better.  The doctors explained today why they thing she is so lethargic (too much to explain) so we will see over the next few days.

Please continue to pray for Addi and that she will not have anymore setbacks but will start progressing toward recovery.  We are overwhelmed at the love and prayers for Addi.  Everyday I am blown away by the number of people that pray for and love a little girl they don’t even know….Thank you!  Have a wonderful Friday night…..hug your kids very tight and let them know how much you love them.  Thank God for their good health and just don’t sweat the small stuff because life is too short and you never know what the next day holds!  I would give anything to be outside running and playing with Addi right now, have her sassing me or just see her smile would be amazing.  Take advantage of the time you have to make memories and spend time laughing with your kids!  Have a great weekend! Much love…LaLa