Not going home today
Not going home today……
Addi’s team of doctors are telling me they hope Addi can go home by Friday but can’t be very definite. Having a really hard time with fluid balance so they really want to see if they can get her electrolytes balanced and see if her body will start absorbing all of the fluid that’s in her body without opening her drain. In typical Addi style she has them stumped on a few things in regards to all of this fluid balance. Just too much to even try and explain in depth.
Talked with one of the doctors on her regular oncology team that works with Dr. George. They are still discussing Addi’s treatment options going forward and don’t have a concrete plan but will by next week when I meet with them. They are thinking it will probably consist of chemotherapy and radiation. They will give her a few weeks at home to recover but feel that it needs to begin as soon as possible so that we don’t give the cancer a chance to reoccur. She is at such high risk for liver failure again that they feel stem cell and immunotherapy might be too risky for her but it may be an option later down the road…..way down the road.
Sometimes in the midst of difficulty when you are in a dark place it is hard to really see what God is doing. It’s hard at times to imagine that there could be something good that’s coming from our struggle and pain. It’s hard to imagine THIS could really be part of His plan. God has shown me something very real in all of this….He has taught me to stop thinking so much; to stop obsessing over the problem but instead have faith and trust that He is in control and that His plan and will is going to be fulfilled regardless of my doubt and worry. He’s shown me that no matter what the outcome….everything is going to be ok and that God is working out His plan right in front of me even when I can’t see it. Remember, you aren’t drowning….God is just teaching you to swim. Be encouraged today. God is always with you and He never fails!
Thank you for the prayers. Keep them coming as Addi continues to improve and gets ready for the next step in her journey! Much love ~ LaLa
3 thoughts on “Not going home today”
I am praying! We don't know each other. I have also been in a dark place with my child and then my husband. I would like to share a song with you that helped me whenever I was low, depressed, questioning, etc…..
https://m.youtube.com/watch?v=eLn0cRl-0GE
I hope this will give some comfort. Your whole family are in my prayers!
Mrs. Debbie
We are praying for you Addi. We are praying for Lala and your whole family. OUR prayer is for a complete healing for you. Smile for your family sweet baby they love you so much. LORD God continue to hold this family in your arms
Keep the faith! Give it all to God and let him work on His plans. It is so hard to REALLY DO THIS! Sending unceasing prayers from St. Louis from us and our Moms in Prayer group and the Poor Clare nuns.
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