Let’s get out and play
Let’s get out and play……
Addi has been feeling better the last couple of days and then this morning started throwing up again. Not sure why she will go a few days and then it starts all over again. She has been real whiney today and has slept a lot so I hope this is not the beginning of something! She has regained her appetite and is eating so good. I always worry about her not eating but it is just part of this. We went out to eat last night and she ate all of a cheeseburger (her favorite food right now), baked beans and fries. That is the most she has eaten in weeks. YAY! It has been a beautiful week in Georgia! Temperatures have been in the high 70’s. It is wonderful and we have tried to get Addi out as much as we could to enjoy the sunshine. We have ridden on her little “budden budden”, went for walks, played hide and seek and just sat on a blanket petting Milo our puppy. She tires out quickly but we get in all the play time we can….while we can! It is great when she feels good and we can be somewhat normal! Well, our normal is probably completely different than most. It is a different world/lifestyle/normal when caring for a child with cancer.
This is a video of Addi and Alexis playing hide and seek…..
The outpouring of love and support for Addi is absolutely amazing and has brought me to tears several times this week. Addi has received several special gifts this week that brought me to tears. The first was this very special prayer quilt. Our friend Angie’s church made this quilt then the people in the church went to the alter an tied a ribbon on the blanket. As they tied the ribbon, they would pray. Then they all gathered around and prayed over the quilt before sending it to Addi. She sent us a video and it just blessed Warren and I so much. When complete strangers go to these lengths to pray and bless your child it is a very humbling feeling. We have had several prayer quilts sent and each are very special and have a very special place in Addi’s room.
Then we got a box from Home Depot in South Hill, VA. I had told Alexis just a few days before how upset it made me that Addi would not be in preschool and would not be getting any Valentine’s from her little friends. Those little things and her not being able to just be a kid hurts my heart for her. THEN she opens the box from Home Depot and inside was a heart shaped box that was filled with Valentine’s that complete strangers took the time to fill out just for Addi. They sent the pictures below and I will tell you I cried like a baby. God is so good to send people to do just those small things that mean so much. To think they set this table up for a little girl in Georgia that they don’t even know so that she would be flooded with Valentine’s is just amazing to us. Thank you Home Depot, in South Hill VA and Laurie Beth Clark. You not only blessed Addi but you blessed this LaLa’s heart so much.
This is just two examples of the many people who have poured into Addi’s life. I wish I could mention every person but it is just too many and I would be typing for days. We are in complete awe of all the people who love Addi and who are lifting her up in prayer daily. It is truly unbelievable how this tiny little two year old girl can be loved by so many people that have never met her from all over the world.
Monday Addi has a doctors appointment at Egleston to discuss MIBG radiation that will occur after immunotherapy/chemo IF the cancer has not shrunk enough. OUR PRAYER IS THAT THE CANCER WILL BE GONE when she has her scan and she will not have to go through the MIBG radiation phase. I just hate the thoughts of it after reading up on it. Please be in prayer with us that this phase will not be necessary and that Addi will go straight to stem cell transplant. The doctors did tell me that even if the scan came back with no signs of cancer that she would still have to go through stem cell transplant (twice), radiation and then immunotherapy for 6 months. She has a 60-80% chance of re-occurrence so this is protocol to hopefully keep that from happening. We believe she will be cancer free at the end and that she will never have to go through this again. God has big plans for Addi so all we can do is trust His plan, go through the process and believe at the end she is cancer free and will live out the life God intended for her CANCER FREE!
Addi will go back in the hospital on February 18 for round 2 of immunotherapy/chemo treatment. Please be in prayer with us that it will not be as hard on her little body as the last one. Thank you all for your prayers, love and support!
I continue to get emails regarding t-shirts so I will put the link again. I guess some have not seen the posts where I have posted the link. I love that so many are wearing her shirts!!