A little something from my heart

A little something from my heart

A little something from my heart…….

I just wanted to share a little bit from my heart after a comment that was left on Addi’s page yesterday.  First, it was not negative toward me, my family or Addi but it was a negative remark regarding my faith.  I am a Christian and I am not ashamed to say that I am.  I love and respect all religions and walks of faith.  I know everyone does not believe as I do and that’s ok.  We can believe differently and still all want the same outcome for Addi.  I have been respectful of all who have posted that were of other religions.  We appreciate all support for Addi.  We DO trust God with Addi’s life.  I don’t always understand Gods plan but I accept it.  First and foremost, I do not believe that God gave Addi cancer but I DO believe that God can heal her from cancer and I believe and have all faith that HE WILL!  I believe He will give her the strength, courage, stamina, joy and perseverance to get through this hard time and I believe one day it will be her testimony.  When you see someone post remarks like…..Where was YOUR God when she got cancer along with some other remarks….it is hard not to lash out…..BUT I didn’t!  I deleted the post and ban the person from the page.  It is so disrespectful to go on Addi’s page where we all try to be uplifting and positive and have someone post such things.  I know it is hard to understand WHY the children have to suffer and even die from cancer but it is not my place to question.  I just have the faith that she will be healed and I try not to ask the question WHY Addi.  I have asked why but now I just ask God to give Addi the grace and mercy to endure whatever comes her way and to help us be strong for her and get her through this.  I know whatever the outcome, Gods plan is greater and better than the plan that I may have for her.

Yesterday I was also scrutinized for how I had Addi snapped in her carseat.  Just FYI….Addi has a port in her chest.  The carseat chest clip has to be a little lower due to that port.  It is very painful for her to have that clip so tight on her chest where the port is.  I know this person was only thinking of Addi and wasn’t trying to be hateful or anything but we would NEVER do anything to put Addi in harm.  My husband is a paramedic and has installed hundreds of car seats and this one is as safe as one can be.  I have also been told by some of her followers that have sent me private messages asking personal questions after I have specifically said I would not talk about anything regarding parents and circumstances that brought Addi to live with us, that if I am going to put our lives out there on social media that they have a RIGHT to know.  I know this is not the mindset of all of her followers and almost ALL have been amazing, supportive and prayerful for Addi and our family but those few that slam you, question you and speak negatively about your faith makes it hard some days and there have been days I just wanted to delete the page.  I will not do that because there are so many invested in Addi and love her.  PLEASE know that we love and appreciate each and every person who follows Addi’s journey and all who have been so supportive since the beginning.  When I began the page almost 6 months ago to update family and friends I never dreamed that Addi would touch so many lives and so many people from around the world would be praying for her.  We are humbled and thankful at the outpouring of love and support that has been given to Addi and our family.  I am so thankful for each of you.  Just know that if I don’t post about certain aspects of our lives or answer specific questions please don’t ask.  It is for a reason. There are some things that we just want to be kept private and do not wish to share.  Thank you for understanding and respecting our privacy in that aspect.

Now that I have gotten that off my chest and shared a little from my heart, I just want to thank all of the many people who have stood by Addi and loved her and our family during this very difficult time.  Our family is amazing and have been right there by our side helping us every step of the way along with many others.  We could not have gotten through this time without your prayers, love and support.  We live in the most amazing community and love Toccoa (and surrounding counties) and all who have embraced us.  We can’t go anywhere without someone stopping us to let us know they are praying for Addi.  Small town living is the BEST!  Thank you to all who have supported us financially, brought food, bought raffle tickets or supported other fundraisers, to those who have organized fundraisers, for all the gifts that have brightened Addi’s day, to those who bought t-shirts, for all the cards of encouragement, to those who have come to the hospital to visit and encouraged us and to the thousands who have prayed because without you we truly don’t know what we would have done and don’t know how we would have made it through the first 6 months of a 2 year treatment plan.  We have just begun this fight with Addi but we have not done it alone!  Warren said at the very beginning when I was crying and so upset about how we were going to do this and make it without losing everything, he said Leanne….We will not ask not one person for money or help (and we haven’t) but I know that God will provide for us and get us through this….and He has!  He has done it through wonderful people out there that love us and many are complete strangers.  There are not enough THANK YOU’s to express our sincere gratitude!

And Addi is having a GREAT day.  She is happy, acting goofy, playing and just being a rambunctious 2 year old.  I love days like today and makes me dread Monday and the start of more treatment even more.

Tonight at 12 the t-shirt campaign will close.  You can order up until then to get a shirt by 2/21. 

To order T-shirts please follow this link to order online:

FACEBOOK UPDATE YESTERDAY:
Addi had a doctors appointment with the MIBG radiation doctor and I feel much better about this treatment IF it’s necessary. We are just praying it does not get to that point but if it does….it is what it is and we will get her through it just like everything else. I now understand her Curie score and why it needs to be 3 or below. Dr. Cash did an amazing job explaining the process and what they want before going to stem cell transplant. 

Addi has felt really good the past few days UNTIL this afternoon when we were headed to Atlanta. Projectile vomiting in my car going down I-85 is not what you want. I’ve never seen her throw up so much. It was so bad that we had to stop and buy a new car seat, clothes and blanket! We will now have a vomit emergency kit in the car. Lol!

Not much going on this week…just going to enjoy her feeling good and preparing for a long week next week. She will be admitted on the 18th for round two of immunotherapy and chemo. Please, please pray this works and the cancer responds. Her little body has been through so much. I just know God is going to do it again and perform a miracle in Addi’s life. I will not accept or believe any other report! #addisjourney


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