Frequently asked questions……..
I am getting hundreds of emails and a lot of those are the same questions and/or comments.  I am sorry but I just do not have time to answer hundreds of emails right now so I thought I would post here and answer some of those so you don’t think I am ignoring you.

The most frequently asked question…..How is Addi?…..I know that everyone anxiously awaits an update especially right now that she is so sick.  I cannot even begin to tell you all that goes into our day.  Many doctors coming and going (she has 5 different specialist groups that visit daily), tests throughout the day, therapy, daily bathing and personal care amongst many other things throughout the day.  It is exhausting for Addi and for me.  I give you my word that as soon as things settle down and I get a grasp on exactly how Addi is doing, I will post by 6:00-8:00 pm everyday.  I truly appreciate you loving my sweet Addi and wanting to know that she is ok.  It truly blesses us that she is so loved by so many!!!  I will faithfully keep you posted because I know how loved she is!

The second most frequently asked is about CBD oil…..
We do give Addi CBD oil when we are home.  Right now Addi is not in the hospital for cancer related issues.  It is a result of a complication from cancer treatment but not the cancer itself.  Although there are reports that the CBD helps symptoms of cancer and may even help prevent the growth, Addi’s issues right now are not her cancer.  Of course I have discussed this with her doctors but it is not prevalent right now.  Addi is in liver failure and because her liver is not filtering like it should, the CBD oil could be more harmful than good.  Addi also has fluid overload and every bit of fluid going in and out is being measured precisely and is part of her everyday care plan.  Putting more fluid into her body would not allow them to give her vital medicines and fluids that she now needs for the liver failure she is in and for her survival.  It is a very fine balance they are working with regarding her fluids especially with her swelling and possibility of respiratory distress again.  I appreciate all of the CBD information and asking if she is taking it but right now it is not feasible but once we are home we will begin that regimen again.  As far as THC….no, she is not taking it at this time.

As far as talking to Amy Largent regarding what she gives Julia….Yes, we have spoken on several occasions.  Right now, as I stated, we just can’t give Addi any extra fluid and the amount of CBD oil needed to be effective could be detrimental to Addi, not help her.

Donation of Blood, Platelets and organs……I have asked the hospital about direct donations of blood and platelets for Addi. They have stated it is just best to ask people to donate so that there is never a shortage but that it is not 100% that Addi would ever get blood or platelets that are designated for her and that it can make things a little complicated.  So I ask you…PLEASE donate because without the people who have donated Addi would not be here.  She is requiring a large amount of blood products.  As far as liver or kidney….Addi is not in need of a kidney right now.  Her one kidney is working as of now and when she was going into failure all they talked about was dialysis.  As far as liver….as we know you can’t live without your liver and they are not stating that they need a portion of a liver for her either. I have been told that Addi would not be eligible for a transplant but we are not to that stage.  I cannot tell you how much it touches me every time I get a message from someone offering such a selfless act.  Addi is so loved

St. Jude’ Hospital…..Addi has some of the best doctors in the nation.  They are cutting edge on all cancer treatments and as far as treating Neuroblastoma, they are probably the best.  They follow the national protocol that has been effective and saved many children.  I know St. Judes is an amazing hospital but we feel confident we are right where we need to be and have actually been told that St. Jude would not do much different than what is being done now except maybe some trial studies that really haven’t been proven to work.

Visitors…..right now Addi cannot have visitors except for immediate family and of course medical team.  She is critically ill and just can’t afford to have anyone bring in any type of sickness to her.  We appreciate that so many want to meet Addi and bring her gifts but right now she is just too sick and she really needs her rest.  I read Addi all of your cards and she loves that.  People have even sent pictures and we have a scrapbook we are keeping them in so please send a card and a picture and we will add you to our scrapbook until she can have visitors.  Many are asking what hospital she is in.  I am not sure if that is because they want to visit or send cards.  Please send cards to the PO Box.  My daughter checks it several times a week.  It is really hard living in a hospital but one day I hope to have a huge event and invite all of Addi’s new Facebook friends.  We will all celebrate when she is cancer free!!!

About Addi questions……Addi will be 3 on May 26.  Her favorite color is pink/purple.  She love animals, playing outside, riding on her riding toys, playing with Milo and basically anything that a typical 2 year old loves.  Especially anything she can do using her hands.  She is highly intelligent so we do learning games with her often.  Addi is so blessed and at this time really does not need any toys but if you really want to do something for her, a card would be great.  If you just really want to do more than a card, I suggest just a gift card and when she wants or needs something I could take her and let her pick it out herself.  So many just want to bless Addi and make her feel special and we really appreciate that so much.  I don’t know many children as blessed as Addi to be loved like she is!  You all are amazing and we are so grateful for the outpouring of love on our sweet Addi!

Personal information…..Please remember that what we post is what we would like the public to know.  I respectfully ask that you not ask me personal questions as much of it cannot and will not be discussed.  I do not mean this in a rude manner whatsoever but there are some things that just must be kept private.  Much of our family dynamics and HOW Addi was diagnosed is in this blog post:  https://addisjourney.com/2019/01/addis-journey-welcome-to-addis-journey.html

T-shirts are still for sale and can be purchased by following this link.  A campaign ends every 10 days then the shirts are shipped about 7 days after the campaign ends.
https://www.bonfire.com/store/addis-journey/

God has blessed us during this journey with many generous people.  We are not asking anyone for money.  We have not and will not.  We had a friend that started this Go Fund Me for us and we are so appreciative. It has allowed me to be out of work and with Addi every step of the way and helped with expenses so much but for those who are asking how to donate this is the only means of donating:  https://www.gofundme.com/prj5wqf8
This is the ONLY Go Fund Me for Addi.  Any others are not approved by the family.

Address for cards:
Addi’s Journey c/o Leanne Masten
P. O. Box 99
Toccoa, GA 30577

Ok, I think that is all for tonight.  We get many other questions but I am just so exhausted and ready to get some sleep.  As I tell you in every post….THANK YOU for the outpouring of love, prayers and support for our sweet Addi and our family.  I know I have said it a hundred times but I can’t say it enough….we love and appreciate you all so much.  Your prayers have sustained us and have kept Addi fighting!!!