So there is something going on with Facebook tonight. I don’t know if I have been hacked or if it is a Facebook issue. I have tried posting on Addi’s page with no success so I hope everyone checks here.

There is something really strange going on with my Facebook account and with Addi’s Journey page. It is not letting me see the post that I posted to her page but I am seeing others share it. If you see anything funny please let me know. I am afraid I have been hacked again. This was my post earlier tonight but I can’t see it on her page. It won’t let me post pictures even on my page. Not sure what is going on. UGH!

Addi was very restless last night again and would scream out like she was in pain throughout the night but I believe it was because she was constipated. Not to give too much yucky detail but that problem has taken care of itself and she has not had much pain today and has rested well. She has rested so much that I have been concerned and so is her nurse. The nurse is going to talk to the doctor so I am waiting on a doctor to come and check her out. I cannot get her to stay awake more than a few minutes. You make her mad and she wakes up but is immediately back to sleep. I did ask the nurse to hold her 4:00 dose of Morphine to see if she would wake up more (but to have it close in case she needed it) but still not waking up much. I am hoping she is just tired from the active morning and restless night. She is either in pain or she is not doing anything at all. Ugh…. It is completely tearing my heart out. I am so ready to wake up and have a normal day with her smiling, awake/aware, no pain and just being Addi!

She had OT/PT this morning which she hated but really needs it. She can’t stand or sit on her own, she isn’t using her hands or legs much at all and her little neck is so weak she can hardly hold her head up….PT/OT have their work cut out for them. They sat her up in a chair for a few hours but she slept the entire time. The therapists helped me put pajamas on her….it has been a while since she had on clothes but she has already thrown up on those so we are back to diaper and blanket for now. It is just too much for her changing her clothes so much when she is sick.

Tomorrow she will be getting a CT of the chest, abdomen and stomach. She has had a fever like every other day so they are going to check and make sure she does not have a fungal infection or something else going on. Please pray they find nothing and that the fevers subside. She has not had a fever today so I can’t say that is why she is so sleepy. Everyday is different but everyday I feel we are one step closer to the end of this nightmare. This rollercoaster definitely has its hills and valleys but we are just thankful we are still on the ride! The doctors did not think she would make it so to be riding the ride is OK! We will take that over the alternative any day. She is a fighter….my little warrior princess and soon….very soon she will be running out the front doors of this place! Until then….we wait, pray and just take each small improvement as a victory. Today’s victory…..POOP! LOL!

I am a photographer and I am going through withdrawals. I am wanting to take pictures so bad, I had to break out the camera and get some sweet shots of Addi sleeping. Have you ever seen anything more sweet and adorable? Thank you all for the love and prayers….keep them coming!

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