Perspective…..

Perspective…..



Perspective……..

Over the past 42 days I’ve experienced so much emotion watching all Addi is enduring and this never ending roller coaster ride. I’ve also witnessed the emotion of others……I’ve looked into the tear stained eyes of a mother who just found out her baby has cancer and heard her desperate cry. I’ve heard the sorrow in a fathers voice as he says there are no more options for his son and it’s just a matter of time as he tries to keep it together for his family. I’ve heard the screams of a mother as her baby was taken off life support and went to heaven. I’ve seen the sadness in the eyes of a mother who has spent many sleepless nights at her daughters bedside as she screams in pain and vomits continuously from the toxins going in her body to kill this beast called cancer. I’ve watched health professionals run down the hall as the code blue is alerted and another child is in distress and at deaths door. I’ve cried with a mom and held her hand who has gotten news that her son has relapsed again for the third time. I’ve listened to the sadness in a nurses voice as she explains they’ve lost 17 patients since January to this horrible disease and the grief she experiences of each child that has become family. Oh my the emotions, the heartache, the pain and the desperation of the parents and families of a child fighting cancer. There are just no words to explain it……

It’s truly an humbling experience yet painful to see the children who are bald with rashes all over their bodies, who are pale with brown circles under their tired eyes, who are thin from not eating or bloated from the steroids, walking the halls attached to an IV pole with tubes coming out of every orifice of their body. You see their pain as they just want a normal life free from the cancer like other kids their age. I will admit there are times I just can’t make eye contact because the pain is so evident and I don’t want them to see the sadness I feel for them. It’s humbling, it’s heartbreaking and it brings you to your knees.

So as I sat here tonight thinking about these long, grueling days in the hospital as Addi fights for her sweet little life….I am also grateful…grateful Addi is still here fighting and grateful for my own children’s good health. I’m thankful….thankful for the gift of Addi’s life and the joy she’s brought to my life, my families life and all who know her and even those who don’t. I’m hopeful….I’m hopeful that Addi is going to get better and come home soon and I’m hopeful for a CURE for all these babies battling this terrible disease. When you pray…pray for all these kids who are battling this disease and pray for their families because you can’t even fathom what they are enduring until you’ve walked a mile or these HALLS in their shoes and I pray you never do!

Perspective…..

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49 thoughts on “Perspective…..”

  2. Take the cancer away make them whole and healthy let them live free from cancer, let them grow. Let our babies live please God, please

  3. I have NO words Lala….. well said, perspective…..
    HE says…..IF you have the Faith of a Mustard Seed….. Hugs and Prayers for Addi and you and your family.

  6. I have walked this journey with a granddaughter and know the pain. Thankfully, Rylie has been cancer free for five years and we also prayed for her to have a ministry to help others. At her young age, she does. She was the same age as sweet Addi when she was diagnosed with bilateral Wilms tumors. Today she has one good kidney and is a very healthy eight year old. My prayer for Addi is the same. I daily pray scripture over Addi as I did for our Rylie. Lala, I admire your faith during this journey. God is so good and He hears. My heart hurts for you at what you experience daily not only with Addi, but for every family you have talked about. I am so thankful to be a part and be able to pray with you and your family. Agreeing for Addi's healing with you and we all will be celebrating with you when you see the full evidence of God's healing over Addi's body.

  7. The pain I'm sure is beyond unbearable. I pray all of the children and parents find some peace somehow .Please God help them…

  8. My heart is breaking as I read this! So many sick children! Oh how I wish I could take all their pain and disease away! God Bless them all! Sending thoughts and prayers for all!! Big hugs to everyone! ❤❤

  9. Praying and thinking of you and Addii daily. May God lay his healing hand on every child’s body that is there at that hospital and all hospitals where they are fighting this horrible disease. Keep the Faith. Layla, Addi is so lucky to have you in her life.

  12. Heart wrenching, soul changing…its been an honor to follow Addi's Journey. May God continue to bless you and may he watch over those precious babies suffering.

  13. LaLa, your words are so true. I'm in the healthcare field and I work within the medical research portion. I work for a company that completes trials for Orphan and Rare Diseases, and unfortunately a majority of the trials are in pediatrics. My heart weeps and aches for each and everyone of the children and their families. I pray everyday for these families and children. I pray for Addi and all of you everyday that she continues to heal and improve. I know God has a plan and I know that we don't know what His plan is, but I have faith that someday, hopefully very very soon, there is a cure for this horrible disease.

  14. Prayers for Addi and the other Prescious Children in that ward. Heavenly Father I ask that You will be done in their lives, in Jesus name,Amen!

  15. Tears burn my face…I feel the sadness, yet the hope.
    I continue to ask our Lord Jesus to give you strength…for Addi too. Your baby girl has touched my heart. So many of us love her and you. All of her family. Our family, we feel your joy and we feel pain with you. Praying for Addi to rest well tonight. Praying for all the children and the other families who need the Savior's healing touch. Gentle hugs. Praying without ceasing.

  16. I pray that Jesus will touch the lives of all the children who suffer any life threatening disease. I know that Jesus listens and God hears our crys. I know that our prayers will be heard and miricals will happen.. In Jesus name I pray.. Amen

  17. Even though I don’t know y’all sweet lil Addi, you, your family & all the kids & families fighting cancer have gotten my heart !! I pray & cry for you all !! My dad, stepdad, grandma & a very good friend died from cancer ! My sister n law is fighting it now !! ! It’s a horrible disease that takes a toll on everyone !! But lil Addi is going to beat this !! She is going to be God’s miracle to give testimony to Gods Grace !!! I will continue to pray for all of y’all !! God Bless from Louisiana !!!

  18. My prayers daily are for complete healing for our little Addi and all the precious children who are fighting this horrible disease.
    Your strength is beyond compare…I admire you so much, I pray the Lord will comfort and keep you and all the parents of these precious children.

  20. There is none like you, O Lord;
    you are great, and your name is great in might.
    Who would not fear you, O King of the nations?
    For this is your due;
    for among all the wise ones of the nations
    and in all their kingdoms
    there is none like you.”
    ~ Jeremiah 10:6-7

    Oh my dearest LaLa, I know it must be so hard to see these precious little ones suffer as a result of this beast called Cancer and the pain their family (just like you) experience seeing them endure so much pain – – – my spirit tells me that God is going to use you even in midst of your suffering to inspire and encourage others. Sending much prayers for you and our sweet Addy.

  21. Dearest Father, I lift up Addi and the many other children who are under the weight of cancer. I lift up the families connected with each little, Lord. You know each one. I pray for your perfect will in each circumstance. Oh God, please wrap Your arms of comfort around the mothers and fathers who need Your warmth and tenderness. God, hold those precious little ones. Hold the siblings who cannot quite grasp what is happening. They notice that Mommy or Daddy isn’t home as they used to be. Take care of those too. Oh, Father, this is so hard. I pray that each one reaches for You. In Your Son’s holy name. Amen.

  22. God Bless you tired, loving, caring LaLa….Addi is Blessed to have you. I have been in your shoes…it is exhausing..but you choose to be there…your heart is there. God is there with you and all the prayers of thousands of people who care about you, Addi and your family. We are all in agreement for Addi's complete healing. On the day you found Addi was cancer free…My husband and I were talking And I looked at the clock..it was 11 am. We prayed for Addi. I truly believe that God reminded us and thousands others , that day, that time and thousands of prayers went up to Him in unison at 11am. HE heard the prayers of His people for this child. We continue to pray for complete…..go home and play healing….make that happen soon Father. In Jesus precious name I pray.

  23. Thank you so much for keeping us up on Addi's journey!!!! I can't even imagine how hard this must be but I want you to know that there are so many praying for you as well as Addi!!!! I check FB everyday so that I can get an update. Please know that if you can take a break, please do. I want you to stay strong and you can't do this every day without someone to help you out. Just know that so many prayers are being sent for sweet Addi and we know that she is going to beat this horrible monster by the name of Cancer!!!!!

  25. Lord, we know You are in complete control and therefore we trust You completely. May Your will be done. Praying for a mighty touch from You, Jesus, for Addi's little body from her head to her feet. Heal her as only You can and bring peace, comfort, strength and rest to Lala and her family. We know their faith is strong, help them to continue to rest in You, believe in Your promises, and trust the process. We love You and praise You in advance for Addi's miraculous healing in the mighty and powerful name of JESUS! Amen

  26. God we ask for the healing of precious Addi we know she is in your hands and that you are in control It is so hard for the family to see her like this and they to believe in healing so God I lift her up in my prayers for a miracle for Addi Amen

  28. May God touch Addi with his healing hand,and take away her pain. Please God heal this beautiful child Addi of this terrible disease. Make her whole again. Let her run and play and be free of all that this disease has done to her small body. Lord hear our prayers. Amen 🙏

  29. Prayers for all those babies and their families. I’ve been blessed to have children and grandchildren who have never experienced that nasty beast. I’ve lost family members to it but seems so much worse when it’s a child going thru it. I pray someday they have a cure so no child or adult goes thru it. Bless you for being by Addis side every minute. For sharing her story with all of us. Prayers to you all ❤️🙏

  30. I have been praying for this precious child knowing God is in control. Praying for all family's with children that have cancer.

  31. I push the love buttons on your Facebook stories often. I’m subscribed to Addis blog. I’ve never commented before now because I figured you need my prayers right now more than my comments. Today’s story about perspective is so amazing I just felt the need to tell you that. As I’ve been watching you journey through this time in your life I’ve personally never seen a stronger woman on any level than you. You and Addi have helped me keep some issues in my life in perspective and reminded me that I should thank God every single day for my three beautiful children and eight amazing healthy grandchildren. God Bless both you and Addi and your entire army fighting with you for Addis health. Never forget you are an amazingly strong, beautiful God fearing woman and admired by many that have stood back and watched you handle all of this so graciously. God Bless Vicky, Mom, Nana ����

  34. My prayers go out to you. I am much in prayer for your sweet Addi. I work at Duke University Hospital in NC and I too see so much suffering and pain but I know the GREAT PHYSICIAN who heals and saves. My prayer is today that Addi has a great day and that you guys get to go home soon. Love and Prayers

  35. I've been following your updates and marvel at your strength and wisdom. You are a very strong, loving mother and I so admire you. Prayers are always with you, Addi, your family and especially all children suffering from this horrible disease. If God takes you to it, He'll see you through it. Nothing is stronger than faith and prayer. Prayers for Addi's quick and complete recovery from this disease. Prayers for a cure in the very near future, especially for all the children suffering from cancer. I ask this in God's name and the name of Jesus Christ, our Lord and Savior.

  37. I pray for every living soul including my mother who is fighting cancer or any health disease or illness ivpray gid has mercy on them I pray God heals them completely in Jesus name I claim I pray strength n loved n serenity for every parent n loved one going Tru this tribulations WTH their family members Amen 🙏🙏

  38. I can't even imagine going through what you are. It breaks my heart to think of your Addi and all the other babies (no matter their ages) going through this and being there in the midst of it. Praying for you and sweet Addi and all those suffering. I know God is able and I pray He intervenes and heals all of them in Jesus' holy and precious name!

  39. LaLa, I have never experienced first hand the agony, uncertainty, frustration that this disease called cancer can inflict on a person and their family. I pray that God will continue the work he's begun to heal Addi. She will certainly be a witness to His healing. Take care of you, LaLa, as you do Addi and your family. Addi is going to need you, all of you.

  40. Even though I do not know you, you are part of my family. When I read your post I place my hand over sweet Addi's picture and my granddaughter and I say our daily prayer for her and ya'll. I lost my daughter Katherine at 7 months old. That was 39 years ago and yet it was yesterday. I feel the pain just as deep today as I did the day my heart lost a beat. I know God has big plans for Addi. We will keep praying for Sweet Addi and the other children who need our prayers as well. Your right to, we can't forget to pray for their families who are suffering right there beside them. Love you my friend.

  41. I have followed Addi's journey from the beginning and have looked forward to you post everyday. I have prayed for Addi and you (family) everyday, never imagined that I would ever really know the journey first hand. 1 week ago my son my 28 yr old strong son was diagnosed with acute lymphoblastic leukemia. Justin is serving the the United States Airforce in Little Rock Arkansas. He is at UAMS fighting for his life. As I pray for your family and Addi, please pray for Justin and my family. Our journey is just beginning its it's been the heights mountain we've ever climbed.

  42. As a mom of a daughter who beat Hodgkin"s Lymphoma in 2003, I've walked those shoes. The pain for the family is so deep that at times, it can be unbearable. It's hard to understand why babies and young kids get this horrible disease. God is our daily strength. We pray for precious Addi everyday and she has become very much loved by our family. We also pray for you as well and will pray for all the children and families going through this. This is the hardest road I've ever traveled. Each day is a new day and there will come a day that Addi will be home and playing again.

  43. Very well said. As I have said before God sure chose the right one when he picked you to love and care for baby girl Addi. You certainly are one strong woman with an ever growing trust in our Heavenly Father…you, Addi and your family are such an inspiration that I cannot even come close with words to express how this journey has affected me. I can't wait everynite to go to your blog and read what has taken place with a miracle everyday. And yes, everyday has been a God sent miracle. I pray for Addi's complete recovery and for you LaLa and the family! God is amazing in what he has already shown us! God Bless!

  44. LaLa, take a deep breath. You are overwhelmed. Do you feel the breeze beside you? That is the Holy Spirit breathing power and courage into you. Take heart. He says, “Be of good cheer! For I have overcome the world”.

  45. For I know the plans that I have for you, declares the Lord.
    Plans that give you hope and a future……
    Jer. 29:11

    Praying for Addi and all with cancer that God will take it all away…forever.

  46. I pray with you, I cry with you, I trust with you, I'm send you all hugs

  47. Thank you for reminding us to be thankful for our blessings. Praying for the children and their families.

  48. Praying for Addi and your family daily. May the Lord wrap His loving arms around you, comfort you, give you strength and wipe all your tears. ALL things are possible with God!

  49. It's so heart-breaking, knowing that all these little children are going thru this awful disease. I just can't image, what you and the others Mothers & their Children are going thru. I hope & Pray that God will touch each & everyone of Them and Heal These Sweet Little Kids. May God Be With You All… Love, Me.

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