Addi had a pretty bad sick spell this morning.  The vomiting is so unpredictable and just when you think it is over, it starts back up again.  We are going on 2 weeks of nausea and vomiting.  Her appetite is very poor but she loves PediaSure so we make sure she drinks at least two of those per day to get calories and the vitamins she needs.  It hurts my heart knowing that the sickness has become part of her normal life.

I was sitting here thinking about what Addi’s normal is today.  Life has changed so much since August 19.  It is normal to her to have no hair, it is normal to have a central line hanging from her chest, it is normal to vomit often and feel nauseated, it is normal to take meds everyday, it is normal to get shots daily, it is normal to go to numerous doctor appointments, it is normal to be in the hospital more than you are at home and it is normal to get taped up before getting a bath. Just a few of the new normals she experiences.  As much as it hurts knowing what her new normal looks like, I am so thankful for God making her strong and able to endure what she goes through.  Although normal at our house looks very different than it used to, one thing remains the same and that is how much we love and adore this baby and how faithful God is to see us through each and every day.

When I think about how life is changed and how sick Addi is, I know how blessed we are that she is doing as well as she is and is still here with us.  I do not follow many cancer journey’s on social media because I just can’t handle it.  People have told me I need to follow this child or you need to find out what this person experienced but I have decided I just want to find out on my own as we go through this journey.  I care about those children and pray for all of the kids with cancer everyday but I feel I just can’t let my mind wander to places that they don’t need to be at right at this moment.  That may sound a little crazy and uninformed but I do read up on EVERYTHING and keep very good journals of everything going on with Addi’s illness.  Every child is different and I just can’t look to the future.  If I have learned anything going through all of this is to live in the NOW, in this very moment and to just have faith.  Lots of faith!

Reading about a little girl Addi’s age that has a week left to live puts it all into perspective.  When you think you have it bad….just remember there is someone else out there that is experiencing something even worse.  It doesn’t make anyones problems not important but it does makes us thankful. I know it makes me thankful that Addi is doing well for what she is going through, can play, can laugh, can walk and use her arms, can speak to me and follow commands and can still give me that big ole hug that I love so much.  It is the little things in life that make you thankful when you see life in a new perspective!

Preparing for a busy week for the little girl!  She has a runny nose today so I am praying that does not delay her scans next week.  Keep her in your prayers as the scans are done and we get results.  Still praying for complete healing and a miracle everyday.  Addi is so blessed to have so many praying daily for her miracle!

For those who have contacted me wanting t-shirts….this is the only place to get them.  The very first ones are no longer available.  Click on the link to purchase.
https://www.bonfire.com/store/addis-journey/

Our 2 minute walk to the mailbox turned into a 2 minute photoshoot.  I miss my photography but just don’t have the time for it right now so Addi is the subject of most of my photoshoots when I need some photo therapy!